Discover the care and support we offer
We provide Hospice care & support to patients and their loved ones living in Kent and East Sussex. Learn more about how we can help you.
If you or someone you love may benefit from Hospice care, you can find out more using the information below. For support or advice at any time of the day or night, please visit our Help Hub.
We provide Hospice care & support to patients and their loved ones living in Kent and East Sussex. Learn more about how we can help you.
Complete one of these short forms and we will contact you. There is no need to wait for a referral from your GP or healthcare professional.
We need to raise over £8 million every year to provide outstanding Hospice care to the local community. To get involved with our fundraising activities, design your own, or make a donation, use the information on this page.
Children’s Hospice Week is taking place 16th – 22nd of June, giving us an opportunity to shine a light on the incredible work of the people behind Hospice in the Weald for Children.
To give you an inside peek at some of the things that our children’s team get up to, Hayley, our Children’s Healthcare Assistant, gave us a behind the scenes look at her day. Read on to discover how Hayley makes a genuine difference on a daily basis, going above and beyond for families supported by the team…
Hayley’s day usually starts in the office, where she carries out various administrative tasks, stays on top of care records, and prepares for visits. Each child and family are supported in a way that is right for them, and that is carefully considered when planning care and activities.
“The visits are in the family home and provide much needed respite for the parents and carers. We offer a wide range of activities from crafts to full personal care, including administering medication, suctioning, and seizure support.
“We are also trained to administer emergency buccal medication for seizures, set up and run feeds for many of the children, using a pump and attaching it to their gastrostomy buttons,” Hayley explains.
All these things are carried out with great care and attention, making children as comfortable as possible. Some children are also supported on hospital visits or various appointments, taking the pressure off of managing things for parents and guardians.
To celebrate Children’s Hospice Week, Hayley’s day also involved participating in a “bake and chat”, where the children’s team prepared baked goods for a cake stand at the Hospice. There, staff, patients, and loved ones were able to enjoy the treats, chat to the team, and find out more about care and support for children.
Visiting families at home is a big part of Hayley’s role, and she gave us a sneak peek at one of those visits. On this occasion, Hayley was being shadowed by Molly, a new member of the children’s team. Here, Hayley shares more about visiting eight-year-old Maisie, and what that looks like, including necessary medical checks, as well as plenty of fun and play.
“On arrival, I showed Molly the buccal emergency epilepsy medication, and we checked the dose and date and that it had Maisie’s name clearly labelled on it.
“We then checked that the suction machine was charged, the circuit was clean, and the correct tubing was attached to it. This is used to suction secretions to prevent the child from getting chest infections. We check all the equipment and slings on arrival. A visual check was also carried out on Maisie’s gastro button before administering her water via it.”
After each visit, Hayley makes sure to type out her notes on Maisie’s care records. “Some of the things I will include are some of the activities that we did with Maisie today,” Hayley shares.
“We had kinetic sand, shaving foam, they’re sensory exploration activities. She had massage on her hands and legs, she had her nails painted, and then later we transferred her onto her bed where she became very excited listening to one of her audio stories.”
At the end of the visit, Hayley checked in with Jess, Maisie’s mum, giving updates about Maisie, and asking how Jess is doing. Here, Jess shares her thoughts about the support she receives from Hayley and the children’s team.
“Today, with Hayley being here, I could go and get some food shopping. Maisie’s been off school, and I can’t really take her in and out of shops with me.
“It’s like therapy for me half the time and Maisie gets her own time when Hayley’s here. She can do what she wants to do and when her siblings are here, they’re all involved. So, it takes the stress off even when all three of them are here as well as just Maisie on her own,” Jess adds.
“I can go and do whatever I need to do. Obviously having Maisie, you can’t even just go to the toilet without worrying. Where she is, what she’s doing, if she’s on her side and anything like that.
“So to take that stress away, to go out and just… I don’t have to be a mum, I can be Jess for two hours. So that’s how it helps me.”
If you missed it, you can watch the behind the scenes video of Hayley’s day here.
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