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We provide Hospice care & support to patients and their loved ones living in Kent and East Sussex. Learn more about how we can help you.
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We provide Hospice care & support to patients and their loved ones living in Kent and East Sussex. Learn more about how we can help you.
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This Dying Matters Awareness Week, we spoke with Claire Wells, Spiritual Support Lead & Chaplain at Hospice in the Weald, to explore this year’s theme: ‘Let’s Talk about Death and Dying.’
Here, she answers our questions, explaining the role of spiritual support in life and at the end of life, as well as navigating conversations around death and dying.
“The Spiritual Support & Chaplaincy team helps people reflect on death and dying by offering a calm, compassionate presence and active listening without an agenda. We do not impose religious views but rather, facilitate a safe space where people can process their emotions and find their own meaning, based on what matters to them. We are here for everyone, whatever their belief, philosophy, background or culture.
“We can help individuals to express and explore their personal beliefs, doubts, fears and hopes and be alongside in their experience of grief, loss and a search for comfort and peace. We offer Quiet Spaces at our Pembury and Five Ashes Hospices, so people can engage in meaningful rituals beyond words, for example, lighting a candle, viewing the memory books or writing a message or prayer for the memory tree. This often prompts reflective conversation, but it does not always need to be about talking.”
“Talking about death and dying is crucial because it helps people plan for the end of life, ensuring their wishes are known and respected. It reduces anxiety both for the individual and for their loved ones. It can prevent crisis decision-making and allows people to focus on living meaningfully in the time they have left.
“For those who are living with a non-curable illness and those who are close to them, it is important to acknowledge the reality of ‘anticipatory grief’. This can begin at the time of diagnosis long before physical death occurs. Talking helps us all to realise that we are not alone and our mortality is part of being human.”
“Some people think that by talking about death and dying, it brings it closer. Avoiding the topic may arise from a superstitious or cultural fear that speaking about dying will make it happen sooner. People often believe that dying is a ’single moment’, when in reality, death is a more gradual process of the body shutting down. Pain in dying is not inevitable, yet much can be done in modern palliative care to manage symptoms effectively.
“It is a common misconception that people of faith remain unshaken in their beliefs. However, a ‘dark night of the soul’ or questioning one’s faith or sense of meaning is a frequent and natural part of the grieving process. Grief is not a linear process and does not follow a neat path with stages we pass through to reach an ‘end date’. There are common experiences, but every bereavement is unique, just as each person is unique. It can be unpredictable and messy. Grief isn’t something we finish or ‘get over’. Most people learn to ‘grow around’ it, integrating the loss into their new reality. If we were to learn more about the dying process, it might help us all as we seek to support our loved ones whilst also being able to understand what we might be witnessing for our own sense of peace.”
“We can try to beat stigma and taboos around death and dying by normalising these conversations and integrating them into everyday life.
“Attending events and initiatives in the community or through hospice events, which bring people together to acknowledge and learn from and support each other, is also beneficial, as is encouraging families to discuss end-of-life wishes before a crisis hits.
“Using clear, honest language instead of euphemisms like ‘passed away’ or ‘lost’ is also very important.”
“Fears about death often go beyond the end of life itself, focusing on the process, the unknown and the impact on others. Will death be painful? Will I lose my dignity? Will I be alone? Will I lose control? How will loved ones cope when I am gone? Will I be remembered? Did my life have a purpose? Will I get to ‘Heaven’ or reach a place of peace? Will my cultural and faith or belief practices be observed?
“People may express regret, guilt and seek resolution, forgiveness or a desire to make peace with themselves or others. The Spiritual Support & Chaplaincy team works alongside other teams to reassure and offer emotional and spiritual grounding. We can sit with patients and those important to them in their uncertainty and fear, helping them to find peace and comfort in their personal sense of meaning, faith, belief or their take on life and death.”
“This is deeply subjective and means different things to different people. It does not mean a ‘happy’ death. Grief and sadness are natural. For many, it means being pain-free, although some cultures and religions actively engage with suffering at the end of life and may decline pain medication for spiritual or ethical reasons. A ‘good death’ refers to an end-of-life experience which aligns with a person’s values, wishes and comfort. Having a say in where death occurs and which treatments are accepted or declined.
“Choices about who is present – some may prefer a peaceful, quiet atmosphere. They may wish to be alone or be with those they love. For others, the cultural expectation may be for a gathering, perhaps the presence of a faith leader and a wider family group. Fulfilling rites and rituals for the end of life and care of the body may be very important. Being able to say ‘goodbye’, ‘I love you’, ‘I forgive you’ or ‘sorry’. Being treated as a person rather than a patient.”
“Accepting our own mortality can shift our perspective on life, living well and focus on what truly matters. When we embrace the fact that our time is finite, we can prioritise deep relationships, let go of trivial worries and frustrations and live each day with greater richness and appreciation.”
“Different cultures hold diverse traditions regarding death. Approaches to death are often shaped by whether a society views life as linear (a beginning and end) or cyclical (a continuous loop of rebirth). This can influence whether death is discussed with sombre silence, celebrated as a transition or integrated into daily life. There may even be a place for humour in some cultures as they reinforce cultural resilience and identity. Some cultures fear speaking about death, while others fear not speaking, believing that it causes the ‘final death’ of being forgotten.
“In certain cultures, death may be discussed loudly and publicly as a testimony to the person’s worth with lamentations and open weeping. For others, it may be a stoic approach as a sign of respect and emotional control. Whatever the differences, the Spiritual Support & Chaplaincy team seeks to meet people where they are, to assess their needs and to engage and advocate accordingly. Open questions, respectful enquiry and knowledgeable understanding and discernment are key.”
“You do not have to face death, dying or grief alone. Spiritual support is here to be alongside you, respecting your unique story and helping you find peace, hope and meaning in whatever way works best for you.”