We provide Hospice care & support to patients and their loved ones living in Kent and East Sussex. Discover how we can help you.
Hospice in the Weald is known for the outstanding care it provides terminally ill adults and their loved ones. The Hospice has reliably offered this across the west Kent and East Sussex area for more than 40 years and, in January, extended this to include care for children and young people.
More than 40 children, parents and siblings are now receiving support from the Hospice’s specialist team six months later. This includes home visits and emotional support from a family therapist. Made up of registered children’s nurses, children’s support workers and volunteers, the team deliver care throughout the week.
This summer sees the Hospice’s children’s care offering reach its half-year point, and we feel lucky to have worked with many amazing children and families already. In this article, we take a look at the stories of 10-year-old Ronit Gurung and 14-year-old Joseph Williams who are both supported by the Hospice.
10-year-old Ronit Gurung and his family receive home visits from the Hospice’s team. Ronit is unable to walk or sit up by himself and can’t communicate verbally, so expresses himself using facial expressions. The team helps to get Ronit washed and dressed, provide chest physio and administer feeds and medication.
“Ronit has the most amazing smile,” said mum Roshni. “He loves music and dancing and giggles at funny things. When you have a child with additional needs, it’s hard to get time to yourself. Thanks to the Hospice team, I can have a few hours break and don’t need to worry. I know Ronit is being looked after and loves all the activities.”
The team also provides after school support for 14-year-old Joseph Williams and his family. Joseph has DiGeorge Syndrome, a rare condition which means he is unable to walk and has learning and health difficulties.
Mum Faye said: “Joseph’s a happy boy, so playful. He’s a bundle of love and joy. The Hospice staff give him 110 per cent. He loves bath time, the more bubbles the better. It’s a relief to know I can safely leave him in their care and can get on with sorting out his feeds and medicines.”
Essential Cookies are enabled at all times so that we can save your preferences for cookie settings. These cookies do not collect any personal or sensitive information or IP addresses. Furthermore, the information they store is not sent to any 3rd parties.
This website uses third party cookies such as Google Analytics and Facebook Pixel to collect anonymous information, for example the number of visitors to the site, and the most popular pages. Keeping this cookie enabled helps us to improve our website.
Please enable Essential Cookies first so that we can save your preferences and give you the best user experience.